Tyler has been a handful! He has been dealing with reflux, pneumonia vs thymus shadowing (on xray), and breathing issues. He's had his first shot of antibotics like a rock star. I am pretty sure all his issues stem from reflux which we are trying to get a handle on, but really will not be better until he grows more. He is back to only taking three ounces in a bottle. Guess he decided five ounces at a feeding was too expensive. He took his first spoon bites of rice cereal this morning. He ate like he's been doing it for years, despite his obvious obstacles both inside and outside his mouth. Only a few drops came from his nose, which is totally normal with clefts. He is continuing to breath like he has smoked two packs a day during his short life. I am guessing this is just a cleft thing too, since it comes and goes, with taping and positioning. I am starting to just ignore the raspy sounds, although others around him think he is dying. It will be interesting when I get back to work in the ER to see if I tune out the noisy breathers there too.... could lose my job for that though!!! haha!! Tyler is growing like a weed despite his issues, he was 10 lbs 6 ozs at last check. He is completely out of his newborn clothes and on to the 3-6 month ones. And his size 1 diapers are very snug, but he has about 100 left to use up, suck it in kid!! (overstocking!!) We have a surgery date for July, which has changed since last blog to three days later. I am quickly learning U of M calls the shots, and we mearly agree. The only plus to waiting until July for surgery is the dreaded pacifier!! Tyler cannot have it, and yet wants it. It amazes me with the defects he has, the taping, and the difficult breathing, he can keep the pacifier in his mouth for comfort. I should take his pacifier and potty train lexi all the same week just to torture myself!
The Etue Estate is buzzing with spring chores. The driveway is in line to be paved in a few weeks. The lawn is perfectly green and the trees are blooming despite last years frying. We have decided against a garden this year, and plan on stealing from the family again. The girls have a new sandbox, and thus a new love. Its keeping them from tearing up the house, fighting, and driving mommy crazy. However, they are still learning the rules about shoes in the house, and sometimes even pants!! They are looking forward to warmer weather, Addy says "she's going to the beach and the lake". Amazing what she remembers from last year. Daddy is just finishing up his schooling for this spring and will be back on swing shifts in a few weeks. I cannot wait to have more days off with him (yes, that translates into him being around more to help with the kids!!) I am also heading back to work next week. Yea, for mommy time and paychecks, even small ones!!Summer, the Etues are patiently awaiting your presence, surgery-camping-lake---FAMILY TIME !!
sasasaSAS
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